Privacy policy
Your trust matters to us. Here's how we handle your information — in plain language.
Who we are
Phelan-McDermid Syndrome Global Organization ("PMS GO", "we") is a non-profit association registered in Boadilla del Monte, Madrid, Spain. You can reach us at info@pmsgo.org.
What we collect
We only collect the information you choose to give us — for example, your name and email when you contact us or subscribe to updates. We do not sell your data, and we never share sensitive information without your consent.
How we use it
We use your information solely to respond to your enquiry, provide support, and — if you asked for them — send occasional updates. You can unsubscribe or ask us to delete your data at any time.
Your rights
You have the right to access, correct or delete the personal data we hold about you, and to withdraw consent at any time. To exercise these rights, just email us.
Cookies & analytics
This website aims to use minimal, privacy-respecting technology. If we add analytics, we will use privacy-friendly, anonymised measurement only.
This is a starting template and should be reviewed by a qualified professional to ensure it fully reflects your data practices and complies with the GDPR and local regulations before launch.