This website is under construction — we're actively building it out. Thanks for your patience.
Skip to content
The global PMS community

Associations around the world

Phelan-McDermid associations connect families, share resources, promote research and raise awareness. This directory lists the ones we know of worldwide — most are independent organizations that are not part of PMS GO. Find your country below, or reach out and we'll help you connect.

Find your association No association nearby?
  • Part of PMS GO
  • PMS association — not a member yet

Hover or tap a country for details. Most of these associations are independent organizations that are not part of PMS GO — yet.

List of all associations

Filter by region to find a Phelan-McDermid organization near you.

AU

Phelan-McDermid Syndrome Foundation Australia

Australia · Oceania

Visit website
BR

Amigos e familiares da Síndrome de Phelan-McDermid

Brazil · South America

Visit website
CA

Phelan-McDermid Syndrome Foundation Canada

Canada · North America

Visit website
FR

Association Française du syndrome Phelan-McDermid

France · Europe

Visit website
FR

Association Tehani et les enfants Phelan-McDermid

France · Europe

Visit website
DE Founding member

Phelan-McDermid-Gesellschaft e.V.

Germany · Europe

Visit website
IT

Associazione Italiana per la Sindrome di Phelan-McDermid (AISPHEM)

Italy · Europe

Visit website
PT

Associação Phelan-McDermid Portugal

Portugal · Europe

Visit website
ES Founding member

Asociación Síndrome Phelan-McDermid

Spain · Europe

Visit website
GB Founding member

Phelan-McDermid Syndrome Foundation UK — PMSF UK

United Kingdom · Europe

Visit website
US Founding member

Phelan-McDermid Syndrome Foundation (PMSF)

United States · North America

Visit website

Are you an association that isn't listed here?

Join the Global Organization and help us build one connected community for Phelan-McDermid Syndrome. Together we reach further.

Join the network info@pmsgo.org