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Membership

Join the global community

Whoever you are, there's a place for you in PMS GO. Choose the membership that fits you and apply in a few minutes — every member makes our community stronger.

For organizations

Organizational membership

For national or regional Phelan-McDermid associations that are legally registered. Full members shape the organization with voice and vote.

  • Voice & vote in the General Assembly
  • Eligible for the Board of Directors
  • Legal registration required
Apply as an organization
Most common

For families & individuals

Delegate membership

For families and individuals affected by PMS, and informal groups in countries without a registered association. Take part with voice at the Assembly.

  • Open to families & individuals
  • For countries without an association
  • Participate with voice (no vote)
Apply as an individual / family

For professionals

Professional partner

For clinicians, researchers, NGOs and rare-disease organizations who want to formally engage with our mission and global network.

  • Collaborate on research & initiatives
  • Access the global network
  • Recognized as a formal partner
Get in touch
How it works

From application to welcome

1

Apply

Complete the online application for your membership type.

2

Review

Our Board reviews your application and supporting information.

3

Welcome

Once approved, you join the global PMS community.

Not sure which membership fits? Email us at info@pmsgo.org and we'll help you find the right path.